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PREMIERE .- Chronic Fatigue Syndrome: LIVES INTERRUPTED. Chronic Fatigue Syndrome: Lives Interrupted. CASA BLANCA blog.

Chronic Fatigue Syndrome: Lives Interrupted Publication April 4 at the White House Web . By Llewellyn King Posted April 4, 2011 - 1:30 pm Category Category Items Featured Items King King's Commentaries Reviews Tags Centers for Disease Control myalgic encephalomyelitis Chronic Fatigue Syndrome

Centers Tags Disease Control CFS myalgic encephalomyelitis XMRV Whittemore Peterson Institute

In 2010, I made more friends in my life . They are scattered throughout the United States and around the world. But for their sake, I wish I had never heard of me. Unfortunately, my new friends know me just because I have taken up their cause . I've written and broadcast about their plight, and they have responded by pouring out his heart to me. For the very small service, I received more recognition, more praise and more stories of life that everything you have written or broadcast in five decades in journalism. My sadness, suffering, new friends are victims of an extremely so-called chronic fatigue syndrome (CFS) . We knew once more robust as myalgic encephalomyelitis (ME) seriously suggests that at least , although not very accurate. Myalgic describes the joint pain and encephalomyelitis, inflammation in the brain and spinal cord . CFS (chronic fatigue syndrome) has no known cure, and varies in intensity over the life of the victim . In 1988, the Centers for Disease Control (CDC) disease called chronic fatigue syndrome after an outbreak in 1985 in the station at Lake Tahoe Incline Village, Nevada As early as the 18 outbreaks of the disease, and were given several names . In 1955, there was a major outbreak in the Royal Free Hospital in London. The case cluster 300 in Nevada is generally recognized as the largest United States. The second largest group was in Lyndonville, New York, a village in the northwest, where 216 cases were confirmed in a population of less than 1,000, also in l985. A doctor Lyndonville, David Bell, is considered one of the true experts on chronic fatigue syndrome as well as one of the most dispassionate in the controversies that surround the disease. Bell has resisted pressure from both the medical and patient groups, while maintaining respect . As I see it, four disputes affecting the discussion, research and therapy:

1. is a serious psychological illness with physical manifestations (a diagnosis aided by the British medical establishment)?



2. is caused by the new retrovirus XMRV (first seen in cancers of the prostate), as some researchers believe, and almost all the 1 million patients in the United States pray will lead to a cure?



3. Some charge is a conspiracy in the medical establishment to minimize the SFC of guilt for past indifference, or the pressure of psychiatric physicians are reluctant to cede jurisdiction.



4. Others fear a threat to the general population - groups confirm CFS is contagious. But the way of pathogen (air, blood, sex, surfaces, food) or how big the risk is unknown.

Thanks to the family of Harvey Whittemore - his daughter Andrea Whittemore Goad has been a victim of chronic fatigue syndrome since childhood - a serious, private financing is being done in the Whittemore Peterson Institute (WPI) in Reno, Nevada is from This institute the most convincing evidence of a retroviral function in CFS has arisen. However, recently, has been refuted by British scientists claim that there was contamination in the testing, skewing the results. Dr. Judith Mikovits WPI British rejected the findings of contamination . She is very sure that you have found this XMRV in most patients with CFS, claiming that she has used four methods of analysis to one in Britain . Bell, at the hands of doctor in New York, said he believes the virus is present . However, only when XMRV is irrefutably shown that the culprit is that you can make a search for a cure. These are some of the issues to be discussed at April 7 to 8 in a "state of the science" meeting Institutes National Institutes of Health in Bethesda , Maryland, but there is no expectation that something new is revealed as the debate rages on the internet daily. Deborah Waroff , a talented author of the New York City, former securities analyst and suffering from chronic fatigue syndrome for 22 years , tells the story of his first attack in this way: " I have no idea how I got it. I had the symptoms of the flu. After a week, thinking he was pretty good, I returned to my normal activities such as cycling and tennis. Then, after a week, was sick again . This repeatedly repeated that summer [1989], until I reached a point that was never well again . After a bit of activity, which would collapse, fold. " often Waroff is bedridden, and nothing has improved permanently." His symptoms were classic , fever, dizziness, upset stomach, swollen lymph nodes, and frequent headaches . She developed cognitive problems like putting the wrong words in sentences, known as dysplasia . Waroff introduced me to my new friends and witness terrible suffering, medical neglect and indifference . Their families are separated, their wives and lovers to drift . infected relatives care for their children . One correspondent told me that they are "dead unburied." Others said they were "living in coffins" . not have any famous spokesman. They have no lobby in Washington fighting for research dollars. They have no hope of a cure is just around the corner, and little confidence that government research organizations are hard enough in any case, to find one. know them is to look into hell.

For the Union of Hearst-New York Times

Posted in Web White House (yes The White House of America). And with their own label and everything!.

and highlights. That's nothing. :)

this out yesterday on the website of the White House today gave the award to Dr. Vizoso "Gijón Exemplary!.